Corporate Governance

The Code of Practice for State Bodies requires that the organisations ‘must serve the interests of the taxpayer, pursue value for money in their endeavours and act transparently as public entities’. CPI is signed up to www.governance.ie which is a guarantee that we adhere to the principles of good corporate governance.  To view our signed governance code click here

Chronic Pain Ireland (CPI) is committed to good corporate governance, high ethical standard and the principles of transparency and accountability. We know that people, including our members, donors and the public, place their trust and faith in us and we strive to ensure we never let them down.

​Chronic Pain Ireland is a company limited by guarantee (Co. No. 238967), a Revenue registered charity (Charity No. 10779), a charity registered with the Charities Regulator (Charity No. 20028022), and is governed by the Companies Acts, Revenue Acts and the Charity Regulatory Authority. We are run by a governing body who are responsible for the overall governance and strategic direction of CPI, for full details please click here

​CPI’s Governing Body are made up of unpaid volunteers many of whom have chronic pain. Nominations to the Governing Body are invited each year in advance of the AGM.

CPI employs one office administrator who manages the day to day workings of the organisation.  The above grant covers the cost of our part time administrator and the cost of office rent. CPI also receives a small amount of revenue from our membership fees and members fundraising efforts. All monies raised go directly towards the provision of support services and running of our health management / self-management programmes. Please see our Donor Charter (below) for information on how we hold ourselves accountable for all donations we receive.

Code of Ethics

​In addition to statutory requirements and those of signatory organisations, Chronic Pain Ireland has identified a principles based Code of Ethics that has been endorsed by our governing body and is available here.  

Please note this Code of Ethics applies in addition to, and is not limited by, adherence to any external organisation’s code of conduct or governance code.

 

Statement of Guiding Principles for Fundraising

Following a resolution by the governing body, Chronic Pain Ireland is fully committed to adhering to the Irish Charities Tax Research’s (ICTR’s) Statement of Guiding Principles for Fundraising. The Principles are voluntary code of conduct drafted by charity fundraising practitioners, donors and stakeholders with the input and support of legal, accounting and business professionals. A copy of the principles may be found here and more details of the ICTR is available on their website www.ictr.ie 

The purpose of Chronic Pain Ireland committing to the voluntary Statement of Guiding Principles for Fundraising is to prove to our members, donors and the public at large that we are willing to go beyond the strict legal requirements concerning donations, finances, transparency, reporting standards and governance. We believe the Statement of Guiding Principles for Fundraising reflects the high standards that we expect of ourselves.

For more information on our compliance, please read our:

Public Compliance Statement

Donor Charter

Feedback and Complaints Procedure

 

Pobal

As part of our commitment for transparency, we voluntarily disclose that we are of receipt of Pobal funding. Pobal is a not-for-profit company that manages programmes on behalf of the Irish Government and the EU. Pobal is an intermediary that works on behalf of the Irish Government to support communities and local agencies toward achieving social inclusion, reconciliation and equality by managing funding and providing resources for suitable programmes.

​Chronic Pain Ireland is a receiver of Pobal grant monies which we ring fence for specific purposes. As such, we adhere to all Pobal and public funding requirements and are subject to Pobal oversight, regulation and auditing. For full details of all Pobal requirements, please see their website at www.pobal.ie

​For full details of accounts, including accountancy practices, please the Finance section out our website.

 

Data Protection Policy

Chronic Pain Ireland is firmly committed to ensuring personal privacy and compliance with the Data Protection Acts, including the provision of best practice guidelines and procedures in relation to all aspects of Data Protection.

Note: We do not sell or share any personal data with any 3rd parties such as marketing companies, etc.

 

Purpose of this Policy

This policy is a statement of Chronic Pain Ireland’s commitment to protect the rights and privacy of individuals in accordance with the Data Protection Acts.

 

Collecting Information

We collect and use information to provide the following services:

  • To provide people with information relating to the services and objectives of Chronic Pain Ireland,
  • To undertake advertising, marketing, direct marketing and public relation exercises,
  • To provide personnel, payroll and pension administration services.

 

Data Protection Principles

We shall perform our responsibilities under the Data Protection Acts in accordance with the following Data Protection principles:

1. Obtain and process information fairly.  We shall obtain and process personal data fairly and in accordance with statutory and other legal obligations.

2. Keep data only for specific and lawful purpose.  We shall keep data for the specific and lawful purposes for which the data was obtained in accordance with the section entitled ‘collecting information’.

3. Process data in ways compatible with the purposes for which it was given to Chronic Pain Ireland.  We shall only use data for with purposes within which it was obtained.

4. Keep data safe and secure.  We shall take reasonable steps to ensure the safety and security, including protection against unauthorised access to and or alteration, disclosure, accidental loss and or destruction of personal data.

5. Keep data accurate and up-to-date.  We shall keep data accurate and up-to-date and have a process in place to ensure that an individual make check their personal data, and if appropriate, correct it.

6. Ensure that data is adequate, relevant and not excessive.  We shall only hold personal data to the extent that it is adequate, relevant and not excessive, in line with the purposes for which the data was collected, retained and used.

7. Retain data for no longer than is necessary for the specific purpose or purposes.  We shall not retain data for longer than is necessary in line with the purposes for which the data was collected, retained and used.

8. Give a copy of his/her/their personal data to an individual, on request.  We have a procedure to ensure that data subjects can exercise their rights under the Data Protection Acts to access their data.

 

Responsibility

Responsibility for ensuring compliance with the Data Protection Acts rests with Chronic Pain Ireland. However, all employees, contractors, volunteers, agents and or servants of Chronic Pain Ireland have an individual responsibility for compliance with the Data Protection Acts.

 

Access Request

Individuals may make a request from Chronic Pain Ireland for:

Right to establish existence of personal data (under section 3 of the Data Protection Acts)

Under section 3 of the Data Protection Acts, an individual may ask whether we keep any personal data on themselves. We shall respond within 21 days of any request giving you a description of the data we hold and the purposes for which it is kept. There is no charge for any request under section 3 but we may ask for identification to verify your name and address for security purposes.

To make a section 3 request, please write to Chronic Pain Ireland, Carmichael Centre, North Brunswick Street, Dublin 7, stating your name and address. We cannot accept section 3 requests by e-mail or telephone.

 

A copy of any personal data (under section 4 of the Data Protection Acts).

Under section 4 of the Data Protection Acts, an individual may ask for a copy of any personal data held by Chronic Pain Ireland. We shall respond within 21 days of any request giving you a copy of any data we hold.

There is a charge of €6.35 to make a request and we can only accept cheques or postal money orders made payable to Chronic Pain Ireland.  You may be asked for identification to verify your name and address for security purposes.

To make a section 4 request, please write to Chronic Pain Ireland, Carmichael Centre, North Brunswick Street, Dublin 7 with the fee. We cannot accept section 4 requests by e-mail or telephone.

 

Data Correction

Any individual may ask for incorrect information to be corrected in accordance with the Acts.

 

Inquiries

This Data Protection policy shall be publically available on our website, www.chronicpain.ie.

Inquiries about this Data Protection Policy should be made to: Chronic Pain Ireland, Carmichael Centre, North Brunswick Street, Dublin 7.