CPI works with all relevant stakeholders and are connected to many Irish and International organisations – as members, affiliates or accredited members.
CPI works with other patient organisations who represent people with long term chronic illnesses sharing knowledge, aiming to improve the health and well-being of people.
A UK charity set up in 2013 offering support for people living with chronic pain.
The Alzheimer Society of Ireland is the leading dementia specific service provider in Ireland. The Alzheimer Society of Ireland was founded in 1982 by a small group of people who were caring for a family member with Alzheimer's or a related dementia. The Alzheimer Society of Ireland is the leading dementia specific service provider in Ireland. The Alzheimer Society of Ireland was founded in 1982 by a small group of people who were caring for a family member with Alzheimer's or a related dementia.
The American Chronic Pain Association has been helping people live fuller lives in spite of their pain for 34 years. Our goal is to provide them with the tools they need, in addition to what their health care provider offers, so that they can improve their skills in the self-management of their chronic pain. We focus on helping the person with pain become an active partner on the health care team.
- To facilitate peer support and education for individuals with chronic pain and their families so that these individuals may live more fully in spite of their pain.
- To raise awareness among the health care community, policy makers, and the public at large about issues of living with chronic pain.
Aware is the national organisation providing support, education and information services for individuals, families and communities impacted by depression and related conditions. Services include support line, support mail, support groups, Life Skills CBT programmes, secondary schools awareness programme and Wellness@Work training programmes.
Fibromyalgia affects an estimated 14 million people in Europe. It has a devastating impact on those who suffer from the disease and also for those carers and families who are trying to support them. Also it imposes a large economic burdens on society and individualsPromote Fibromyalgia awareness to politicians, physicians, scientists and the general public on a European level.As Fibromyalgia is adopted by the European politicians by way of accepting the written declaration 69/2008. It is for ENFA to get the written declaration into action with a primary goal to get Fibromyalgia as a key topic in the European Health Programme.
EUROSPINE, an organisation spanning Europe, aims to stimulate the exchange of knowledge and ideas in the field of research, prevention and treatment of spine diseases and related problems and to coordinate efforts undertaken in European countries for further development in this field.
Patient Line is part of EUROSPINE, whose goal is to provide up-to-date information to patients. It is managed and edited by a committee of experts from different disciplines, including clinicians and researchers, and the information is based on the most recent evidence.
FibroIreland has been created for people affected by fibromyalgia. It provides general information to help you understand how fibromyalgia affects you and what you can do to manage it. It also tells you where to find further information and advice.
We aim to :
- Listen with empathy to your experience of FM
- Make FM better known and understood
- Provide up-to-date information on FM
- Support those caring for people with FM
- That all people with Fibromyalgia in the UK should have access to the mechanisms needed for fast and accurate diagnosis.
- That all people with Fibromyalgia in the UK should have access to effective, evidence based treatments.
- That all people affected by Fibromyalgia in the UK should not be subject to discrimination because of the condition, including discrimination by employers, medical professionals or the state.
“The Migraine Association of Ireland (MAI) exists to provide information, support and reassurance to migraine sufferers and their families while seeking further research, better treatments and increased public awareness of the condition.
The Association runs a responsive and confidential helpline and produces information leaflets on all aspects of migraine. In addition to organising training events and information campaigns, the MAI gives workplace presentations to employers and employees and hosts public information evenings across Ireland. The MAI also facilitates health professional training through outreach programmes which target hospital based doctors, general practitioners and the medical community at large.
The MAI is a member of the World Headache Alliance, the European Headache Alliance and the Neurological Alliance of Ireland. Through our own organisation and these umbrella groups the interests of migraineurs are widely represented and recognised.”
The Migraine Trust is the health and medical research charity for migraine in the United Kingdom. It seeks to empower, inform and support people affected by migraine, whilst also educating health professionals and the public, and actively funding and disseminating research.
Key areas of work include:
- A free and confidential Information and Enquiry Service, which responds to questions about migraine and disabling headache.
- An Advocacy Service that aims to help people understand and assert their rights when facing discrimination at work or in education or healthcare settings.
- Organising regular ‘Managing Your Migraine’ events throughout the UK.
- Funding vital research to increase our understanding of migraine, and ultimately seek a cure.
Founded in 1965, The Migraine Trust is proud of its expertise and reputation, and its commitment to making good quality, evidence based information about migraine as accessible as possible. Visit www.migrainetrust.org for a wealth of information about migraine, details of upcoming events and contact details.
The Migraine Trust is a registered charity in England and Wales (1081300) and Scotland (SC042911)
Unit 1-3, 62-66 Newcraighall Road, Fort Kinnaird, Edinburgh, EH15 3HS
Tel: 0131 669 5951 Helpline: 0300 123 0789
Web: painconcern.org.uk, facebook.com/painconcern
Pain Concern provide information and support to people with pain and those who care for them, whether family, friends or healthcare professionals. We aim to raise awareness about pain and improve the provision of pain management services, through our policy and campaigning work. Our Airing Pain radio show is a series of audio podcasts featuring the experiences of those managing their everyday pain, and interviews with top, internationally- recognised experts. Our magazine Pain Matters contains news, features and comment on topics including self-management techniques, research into pain treatments, and personal experiences of living with pain. It is available in print and electronic form. We run a helpline staffed by volunteers, who provide information, support, or just a listening ear to people wanting to talk about their own pain or that of a family member or friend, and an online community on HealthUnlocked which provides members with a forum to share experiences. A free information pack on how to manage pain is available.
SII is the support and representative organisation for people with a spinal cord injury and their families throughout Ireland. Based in the grounds of the National Rehabilitation Hospital in Dun Laoghaire, Spinal Injuries Ireland supports over 9,000 people nationwide, comprising those who have sustained a spinal injury, their spouses and families. We focus on dealing with the many vocational, social and practical issues facing people and support them from onset of injury to living in the community though our nationwide service of outreach liaison officers. www.spinalinjuries.ie
Patient Education Website for patients suffering from chronic pain regarding alternative treatment options.
Trigeminal Neuralgia Ireland hold support group meetings approx. 4 times a year